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How many incurable, rare diseases do you know that we still haven't found a cure?
350,000,000
The number of patients suffering from incurable diseases worldwide
7,000
The number of incurable diseases found worldwide
7 out of 10
Deaths caused by Chronic Diseases out of all deaths
$ 4.3B
Economic loss due to incurable diseases
Problem
There are still numerous people in pain due to many unconquered diseases at this moment,
either from not knowing the exact cause of their diseases and proper treatment or their diseases being not curable. Their suffering strikes a family as a whole, both psychologically and economically, and end up causing astronomical social cost.
Solution
A key to the solution : Patient-Generated Health Data(PGHD)
Humanscape believes that systematically organized information from a good number of patients can be a solution to unconquered diseases.
PGHD takes up around 60% of total amount of health data. However, due to the lack of a solid platform where it can be collected and organized in, it only exists in fragmented form. We, Humanscape, aim to free all mankind from diseases by integrating PGHD into one source.
PGHD takes up around 60% of total amount of health data. However, due to the lack of a solid platform where it can be collected and organized in, it only exists in fragmented form. We, Humanscape, aim to free all mankind from diseases by integrating PGHD into one source.
Benefit
Through Humanscape,
Patients
Can get more motivated to fight against their diseases by being highly involved with their treatment.
Researchers
Can conduct efficient incurable disease-related researches, such as drug development, based on the real data shared by patients.
Medical experts
Can gain valuable insights and provide precisely targeted treatment to each patient.
Application
Personal health profile
Patient’s personal health profile, such as daily records of illness, associated symptoms, administered medication and IoT data can be entered and managed altogether in profile section. Under patients’ permission, this data can be utilized for researches and clinical studies, ultimately bringing better chances for recovery.
Data hub
When it comes to incurable or rare diseases, relatively small amount of patient data can be still useful for pharmaceutical companies and clinical studies institutes to gather target patients and conduct researches. For example, in 2011, there was a case which existing medical research paper was refuted by 149 ASL patients’ data.
Community
Health records shared by patients, currently scattered around different patient communities focused on certain diseases, can be browsed in a single platform. The rarer disease it is, the less information is available. In this respect, every little piece of information is valuable and can be a great help.
Why Blockchain?
People’s health data should not be monopolized by a few but must be safely controlled and utilized in transparent manner for the public interest.
Patients’ health data has been in the hands of the third parties who try to monopolize and commercialize it. Thus, it was nearly impossible for patients to know to what extent their health record is collected, who needs it and how it is used. However, on blockchain that provides transparent environment in data usage, anyone can look up the transactions of data and ultimately patients can retain control and authority over their own health data.
Token Economy
Roadmap
